Notes:

Latest blog posts from Myeloma Hope

Naughty Don
Edited and errors corrected Nov 18. Perhaps the new CC-4047 drug has done the best it can. After nine four-week cycles in the phase-II trial, overall results are good but numbers are no longer improving. M-spike actually went up slightly this month for the first time, from 0.9 to 0.97, though...
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Published 2 weeks ago

Good News Again
October 16, 2008: Eight four-week cycles of the phase-II trial of the new Celgene drug CC-4047 are now complete, and overall results are great. M-spike dropped again this month from 1.0 to 0.9, just a third of the high of 2.7 at the start of the trial. YAY! IgG is virtually unchanged, and...
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Published a month ago

Stable
September 16, 2008: Seven four-week cycles of the phase-II trial of the new Celgene drug CC-4047 are now complete, and overall results are great. M-spike is unchanged this month at 1.0, but down from a high of 2.7 at the start of the trial. IgG is up a little but I have a cold which can make...
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Published 2 months ago

Mayo Clinic Visit Aug 22
We celebrate the end of cycle six of the phase-II trial of the new drug CC-4047 with dexamethasone (dex). The first three monthly cycles brought very good results, then the fourth and fifth cycles not so much, but this sixth cycle seems to point to a continuing gradual decline in tumor burden....
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Published 3 months ago

Naturopath Visit
Sunshine and I went to see the naturopath Dr HH last Thursday, with two major issues: Stable Disease Despite Treatment: My IgG and M-Spike have been almost level for two months now, even though I have been on the drug trial which includes CC-4047 and dexamethasone (dex). So what can I do to...
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Published 4 months ago

Glass Half Full
In early March I joined a phase-2 trial (study) of Celgene's new IMiD drug CC-4047, with once-weekly dexamethasone. The first three one-month cycles brought very good results, each with approximately a 25% reduction in markers, but the fourth and fifth cycles have been less spectacular. My two...
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Published 4 months ago

Cool Calendar Program
We recently discovered a nice calendar program called Mozilla Sunbird. If you are interested, here is a post about it.
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Published 5 months ago

Diabetic for a Day
Or two. DEX makes us temporarily diabetic by messing with the glucose transport system, which decreases the body's normal ability to move glucose out of the blood and into muscles and other organs. I have a blood glucose monitor and did a simple study of my own blood glucose, taking a reading...
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Published 5 months ago

Equivocal Results
In early March I joined a phase-2 trial (study) of Celgene's new IMiD drug CC-4047, with once-weekly dexamethasone. The first three cycles brought very good results, each with approximately a 25% reduction in markers, but this fourth cycle was less spectacular. My two primary markers are IgG...
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Published 5 months ago

Agent Orange
Vietnam veterans and other veterans who have myeloma and who may have been exposed to the herbicide/defoliant Agent Orange are eligible for benefits from the Veterans Administration and other agencies. There is no conclusive evidence that Agent Orange causes myeloma, but there is some evidence...
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Published 6 months ago

Good News from ASCO
The International Myeloma Foundation (IMF) has posted a news article announcing findings presented at the American Society of Clinical Oncology (ASCO) last week indicating that "novel" treatment options such as Revlimid and Velcade have significantly improved patients' survival. In...
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Published 6 months ago

CC-4047 Rocks Again
Three months ago I enrolled in a phase-2 trial (study) of Celgene's new IMiD drug CC-4047, with once-weekly dexamethasone. This third cycle brought another good result. My two primary markers, IgG and M-spike, are both down more than 50% after three months. This is an excellent response,...
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Published 6 months ago